Writers for rare:
An Anthology of Personal Stories from the Rare Disease Space
Book Launch is September 16, 2025.
pre-order by August 18 to receive free shipping.
Nearly 10% of the population lives with a rare medical condition, yet the personal experience of the rare disease journey often remains misunderstood or overlooked.
Writers for Rare is a collection of stories told from different perspectives in the rare disease space: patients, caregivers, medical professionals, and industry allies.
Meant to give voice to the challenges and triumphs of those living with a rare condition, caring for someone affected, or working on behalf of the rare community, the book offers an inspiring translation of the rare disease odyssey.
We’re donating 5% of book sale proceeds to NORD’s Rare Action Network (RAN) to support their rare disease advocacy work.